Originally written July 22, 2007 on my forum.
Today I woke up and as usual I had to be moved via hoyer lift to my Lazyboy to get cleaned by my wife, be fed by my wife and finally have the computer rolled in front of me so I could at last begin the only independent activity left in my life, working on my computer with the key to this independence a HeadMouse. Today was the same as any other day especially the last 10 years since being diagnosed with ALS where each day blends into the next with the only things breaking the monotonous pattern being the occasional outing, visitor, holiday or my favorite a hospital visit but I felt something different as I began to feel a boiling in my gut. No it wasn't last night's meal or the summer heat getting to me, it was anger. It kept building to the point where I wanted to scream ENOUGH!!! Then it came to me, "It's time!" It's time to stop being nice and DEMAND that ALS and diseases like it cease to exist. It's time for us to be treated just as humanely as the prisoners at Guantanamo Bay. It's time to stop the legal holocaust against our families that allows us and our families to be stripped financially even when we have done everything correctly and it causes some PALS to choose death instead of fighting to just save their family's finances. IT'S TIME to DEMAND much more than the few pennies we're given to find a cure but instead get the billions put toward erectile dysfunction, hair loss, fat reduction, unjustified wars, bridges to nowhere, melting ice and all the other wasted money on trivial things to SAVE OUR LIVES!! Finally, IT'S TIME for us to stand up (figuratively for most of us) and in one voice yell, "We're MAD AS HELL AND WE'RE NOT GOING TO TAKE IT ANYMORE!!!"
